I wasn’t a drug seeker, I was dying. For 18 months, I begged to be heard as my body deteriorated, only to be dismissed again and again. By the time someone finally listened, my kidney was beyond saving. What I lost wasn’t just an organ, it was trust, time, and the chance for this to have been prevented.
After years of severe, unexplained pain and medical dismissal, this patient was diagnosed with Nutcracker Syndrome and faced complex treatment decisions. In 2018, she pursued a therapeutic nephrectomy paired with living kidney donation, an unconventional approach that resulted in both personal healing and a second chance at life for another individual.
LJ Dong
Feb 183 min read
A growing library of patient experiences, educational pieces, and documented perspectives related to Nutcracker Syndrome.