Sophia Moore

Sophia is an advocate in the Nutcracker Syndrome and broader rare disease community. Her connection to Nutcracker Syndrome began with her diagnosis in 2021, followed by a renal autotransplant in 2022. She has also been diagnosed with and undergone surgery for additional Vascular Compression Syndromes. Sophia brings professional experience from nonprofit and healthcare sectors and applies BS in Health Sciences with her experiences to advocate for rare disease legislation and policy change. Through her work with the NCSA, she is committed to advancing patient-centered advocacy, improving awareness of Nutcracker Syndrome, and supporting change for the rare disease community.